Why we're here.

Members of the bereaved family can prevent organ donation if they are unaware of their loved one’s decision to be a donor. 43% of families are still saying 'no'.

Why ?

Because people aren’t talking. In fact, research tells us that 80% haven’t shared their donation choice with their family. We know it can be a tough conversation, one that can be confused by myths and misinformation too. There’s a real need for clarity and truth, along with personal experiences shared by medics, donor families and patients.

That’s why !

By educating people on the positives of organ donation, we hope more people make organ donation their legacy.

What we do

As a charity, we use funds for awareness-building and educational initiatives that spark interest and get people talking about organ donation.

Here at Live Life Give Life we get involved with exciting and colourful projects that speak directly to adults and youth, encouraging interaction with peers, teachers and parents alike.

Upbeat, uplifting and meaningful, our campaigns focus on helping individuals young and old make an empowered choice about their donation legacy.

How we’re making a difference

If it’s thought provoking and interesting, it’s worth sharing. Live Life Give Life’s activities are designed to change the way people think and talk about organ donation.

The solution to more organ donors is literally in all of us!

Find out more about some of our exciting initiatives and get involved.

Our Story

Our Story

Live Life Give Life was founded in 2006 by Emily Thackray and Emma Harris both afflicted by Cystic Fibrosis (CF). The two young women had lost many friends to CF and, at the time, Emily was on the waiting list for a life-saving lung transplant.

The shortage of organs and donors inspired Emily and Emma to create a T-shirt campaign to raise awareness and encourage people to sign the organ donor register. Live Life Give Life was their slogan and their fledgling charity; and went on to attain charity status in 2008.

Emily received a transplant is 2007, and a further transplant in 2014, but tragically passed soon after. Emma continues to fundraise and raise awareness for the cause.

Our Team

Here at Live Life Give Life, many of us have an emotional and personal connection to organ transplantation. Our trustees, advocates and experts include medical professionals, families of donors, people awaiting organs and recipients of donor organs.

Mandy Venters

Chair & Treasurer

“Organ donation saves lives and families and leaves a legacy of hope.”

Mandy Venters

Chair & Treasurer

I was born in Zimbabwe and had a carefree childhood with good health taken for granted. After qualifying as a chartered accountant, I moved to London. Here, I enjoyed the opportunities, professionally and personally – especially being able to indulge my passion for travel.

Therefore, it came as a huge shock when I discovered that I had chronic kidney disease, and that I needed a kidney transplant. After nearly six years on dialysis (nine hours each night) I finally got ‘the call’ and received a kidney from a woman who had shared her choice to be an organ donor, before her untimely death.

In the twelve years since my successful transplant I have relished the chance to ‘pay it forward’. Working for Live Life Give Life has helped me do this, and along the way, I’ve met many inspiring people who have enriched my life immeasurably.

“Organ donation saves lives and families and leaves a legacy of hope.”

Luke Yates

Trustee

“I'm in awe of the families who, in times of despair and grief, say “yes" to donating a loved one’s organs and help others live on.”

Luke Yates

Trustee

I joined Live Life Give Life after my wife, Samantha, passed away. She died before she received the double-lung transplant she needed to treat end-stage lung disease caused by Cystic Fibrosis. During our time waiting for organs to become available, we embarked on making a series of video diaries of our journey; footage which later became the basis for the documentary A love worth giving.

Sam was on the waiting list three years and three months. In that time, I completed my PhD – biomedical research with a goal to help people understand human disease – the direction of which was inspired by Sam’s situation. In the end, all the waiting and hoping was in vain, she was only 28 when she died.

Sam was a registered organ donor: she said that if she was willing to receive an organ she should be willing to donate. “The family and I decided to honour her choice”

“I'm in awe of the families who, in times of despair and grief, say “yes" to donating a loved one’s organs and help others live on.”

Roydon Turner

Trustee & Creative Director

“Being an organ donor is one thing we can all do, it gives us all a purpose even in the darkest hour, allowing loved ones to be comforted and let love live on.”

Roydon Turner

Trustee & Creative Director

I’ve over twenty years’ experience as a creative director and film director. I first worked with Live Life Give Life to devise the campaign Let Love Live On, which attracted a lot of media attention.

My path to working with the charity stems from the loss of my brother when we were young. When he died, it didn’t occur to my family to donate his organs. Now I think that had we done so, his gift of life to others would have helped us heal. As a result, I’m determined to encourage families to share their choice to donate, so that, should the worst happen, they’ll draw comfort from their loved one’s legacy.

I believe in laying the foundations for future change by educating younger generations. In 2015 I created The Orgamites to teach kids, age five and up, about health and organ transplantation. We’ve activity boxes for home and school and work with private charities, the NHS, ESOT and GOSH.

“Being an organ donor is one thing we can all do, it gives us all a purpose even in the darkest hour, allowing loved ones to be comforted and let love live on.”

Rachel Prosser

Trustee

“Every day, I am inspired by people who have been touched by the power of organ donation.”

Rachel Prosser

Trustee

Transplant has been part of my life since I was fifteen, because, in September 2000, I was diagnosed with leukaemia and underwent a bone marrow transplant. Post-transplant I got graft versus host disease, which attacked my lungs and caused permanent damage. As a result, I needed a single lung transplant, and in 2012 I got ‘the call’ and received a donor lung which changed my life forever.

I feel very blessed to have received a transplant. My donor and her family are always in my thoughts; without her – and them – choosing organ donation, I wouldn’t be here today.

I’ve worked with Live Life Give Life since 2013, and focus on fundraising in lots of different ways – no event is ever too big! By working with the charity, I hope to make a difference by encouraging people to talk about organ donation, and make their choice known to their loved ones.

“Every day, I am inspired by people who have been touched by the power of organ donation.”

Mel Gould

Trustee

“My sister still lives on in other people, which was the only way forward for me.”

Mel Gould

Trustee

My connection with organ donation is through the sudden loss of my little sister. She passed away from a brain haemorrhage aged just twenty. In the twenty-five years since her death, I live better every day knowing that there are six people out there who benefitted from our family’s decision to donate her organs.

It’s a question that you will never want to be asked but if you are, saying yes will not only benefit the recipients, but also all of their families too.

My darkest memory of life has given me my sister’s legacy and put an end to the heartache of others. I am passionate about passing on my experience of making the organ donation decision to others who will be placed in the same position as myself.

“My sister still lives on in other people, which was the only way forward for me.”

Tessa Gatti

Administrative Support

“Talk about organ donation – it makes things easier for everyone.”

Tessa Gatti

Administrative Support

I joined the Live Life Give Life team in 2012 to help with the admin side of things. I process all the important requests and people’s kind donations; I also edit any incoming life stories for our website.

As a parent, the campaign James Needs a Heart struck a particular chord with me, because it involved a young child desperately in need of a donor heart to save his life. I also have several friends who have been affected by organ donation and Cystic Fibrosis, so my work with the charity has helped me gain a more personal insight into their situation.

Very few people seem to have thought about organ donation, let alone discussed their choice with their loved ones. It makes sense to do so, because it will help them know they’re making a decision in-line with the choice you made. It’s a win-win situation for everyone.

“Talk about organ donation – it makes things easier for everyone.”

Would you like to join our team?

We’d love to hear from you. Simply send an email to info@livelifegivelife.org.uk and tell us your story.

The LLGL Advocates

PA
Peter Atakpo
MC
Mimi Cook
KC
Kathryn Croker
EH
Eilis Hall
VL
Veronica Lanzetta
KL
Kate Lewis
VP
Vicky Perry
AR
Angharad Rhodes
HG
Holly van Geffen
GW
Georgia Wilding
JL
James Lewis

Want to know more ways you can help?

Get Involved

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